Health research: working in partnership with people with intellectual disabilities

People with intellectual disabilities (ID) are frequently excluded from health research and their views are rarely captured. There is a need to develop robust public engagement methods with this marginalised group to improve quality and diversity in research into ID and to challenge barriers and attitudes that exclude people with ID either as subjects or participants in studies. 

We will develop an adapted citizens’ jury method that will empower people with ID to deliberate on health research issues. We will produce a consensus report with recommendations for the ID research community and we will have jury members and a project team leading a knowledge exchange session at the International Association for the Scientific Study of Intellectual and Developmental Disabilities global congress.