Consenting Health related data through Social Media (CHASM Project)


  • Dr Ciara Heavin

    University College Cork

Project summary

Social media platforms (SMPs) are designed in a way which may hinder users from fully understanding the consent process for their personal health data to be used as part of research. The current visualisation of the consent process on mobile devices is very restrictive due to screen size and the amount of text visually presented to the user. 

This project will explore a new approach to visually presenting the consent process to patients on SMPs. The study aims to understand the current design process of SMPs for obtaining consent from users, to obtain users’ perceptions on providing consent based on the current design and identifying new design criteria for the consent process. 

The criteria identified by the research could be used  by medical or clinical health researchers when obtaining informed consent electronically outside of SMPs.