Wellcome Trust comment on NHS England care data

NHS England has announced that it plans to delay the collection of data from GP surgeries until the autumn and that it will work with patients and professional groups to ensure information is accessible and reaches all sections of the community in order to build confidence in the initiative.

Nicola Perrin, Head of Policy at the Wellcome Trust, said: "Sharing information from medical records has huge potential to drive progress in medical research and healthcare delivery, but systems for achieving this need to be trusted and understood by everyone. The Wellcome Trust therefore welcomes NHS England's decision to postpone collection of data under its care.data scheme. This should allow for fuller communications that ensure people are aware of how their data will be collected and used, the safeguards that are in place, and how to exercise their right to opt out."