Returning research results: a northern European research network


  • Dr Nina Hallowell

    University of Oxford

Project summary

The collection and analysis of biospecimens, such as blood samples and DNA, and other types of health data, such as blood pressure readings, lifestyle questionnaires, during research sometimes generates information about the participants, which may enable them to manage their health. Some bioethicists have argued that clinically useful research results should be returned to participants as people have a right to know information that may be used to prevent future disease. Others argue that returning this information is not straightforward as receiving the information may have negative consequences for the individuals concerned. It may also be inaccurate and returning the information may use scarce resources. 

We will explore these issues by setting up a bioethics network of researchers who are conducting research on the return of research results. We will provide networking activities, meetings, and a one-day conference to generate new research ideas.