The governance of data sharing for genomic and other health-related data in Africa 


  • Dr Ciara Staunton

    Middlesex University London

Project summary

Developments in genomic and other health-related research requires the use and re-use of large amounts of genomic and health-related data. The use of this data is tightly regulated in Europe and other high-income countries (HICs). Currently, many low and middle-income countries (LMICs) including countries in Africa do not have any legislation on data sharing. 

We will establish an interdisciplinary forum in Africa to discuss important issues in data sharing from the African perspective.