Developing future research agendas on the socioethical impact of genomics through interdisciplinary live data-sharing
Year of award: 2019
Grantholders
Dr Felicity Boardman
University of Warwick
Project summary
As genomic medicine becomes integrated into NHS healthcare, it is important that we understand the social and ethical impact this will have on people and society. However, relatively few researchers working on these topics share their data with researchers outside their team or with those from different fields of expertise.
We will bring together researchers, academics, policy advisors and clinicians from a range of backgrounds, such as social sciences, ethics, medicine and law, who would otherwise not meet, to work together to explore and better understand the impact of genomics by sharing data and exploring their emerging ideas. This data-sharing will occur through four workshops, informed by an advisory group of public and patient participants.
The workshops will help to develop new ways for researchers to work together on themes that cut across research projects that can be continued beyond the lifetime of the project through online networks and future meetings.